STATE — When a loved one suffers a stroke, it can be overwhelming for family members who will most likely become the caregivers. There are countless questions. What medications have been prescribed? What side effects should you watch for? Does your home need to be modified to meet the needs of the stroke survivor?
To help answer common questions, the American Stroke Association has released a list of 15 tips to help family members cope with their new role as stroke caregivers. The list, created as part of American Stroke Month in May, ranges from recovery expectations and therapy to resources and preventing secondary stroke.
15 Things Caregivers Should Know:
- Be well informed. Know the following: the medications that have been prescribed and their side effects, ask if your home should be modified, ask the physician to clarify any unanswered questions or to provide written information that explains what occurs after the stroke and during recovery or rehabilitation.
- Reduce risks, or stroke may strike again. Make sure your loved one eats a healthy diet, exercises, takes medications as prescribed, and has regular visits with their physician to help prevent a second stroke.
- Know the facts. Recovery depends on many different factors: where in the brain the stroke occurred, how much of the brain was affected, the patient’s motivation, and more. Because every stroke and stroke survivor is unique, avoid comparisons.
- Gains can happen quickly or over time. The most rapid recovery usually occurs during the first three to four months after a stroke, but some stroke survivors continue to recover well into the first and second year post-stroke.
- Some signs point to physical therapy. Caregivers should consider seeking assistance from a physical or occupational therapist if their loved one has any of these complaints: dizziness; imbalance that results in falls, difficulty walking, inability to walk six minutes without stopping to rest; inability to do things that he/she enjoys or increased need for help to engage in daily activities.
- Don’t ignore falls. Falls after stroke are common. If a fall is serious and results in severe pain, bruising or bleeding, go the Emergency Department for treatment. If a loved one experiences minor falls (with no injury) that occur more than two times within six months, see your physician or the physical therapist for treatment.
- Measuring progress matters. How much acute rehabilitation therapy your loved one receives depends partly on his/her rate of improvement. Stroke survivors on an acute rehabilitation unit are expected to make measurable functional gains every week as measured by the Functional Independence Measure Score (FIMS). Functional improvements include activities of daily living skills, mobility skills and communication skills. The typical rehabilitation expectation is improving 1 to 2 FIM points per day.
- A change in abilities can trigger a change in services. Medicare coverage for rehabilitation therapies may be available if your loved one’s physical function has changed. It there appears to be improvement or a decline in motor skills, speech or self-care since the last time the patient was in therapy, he/she may be eligible for more services.
- Monitor changes in attitude and behavior. Evaluate whether your loved one has difficulty controlling their emotions. Consult a physician to develop a plan of action.
- Stop depression before it hinders recovery. Post-stroke depression is common and can significantly affect your loved one’s recovery and rehabilitation. Consult a physician to develop a plan of action.
- Seek out support. Community resources, such as stroke survivor and caregiver support groups, are available for you and your loved one. Stay in touch with a case manager, social worker or discharge planner who can help you find resources in your community.
- Learn the ins and outs of insurance coverage. Be sure to consult with your loved-one’s doctor, case manager or social worker to find how much and how long insurance will pay for rehabilitation services. Rehabilitation services can vary substantially from one case to another. Clarify what medical and rehabilitation services are available for hospital and outpatient care.
- Know when to enlist help. If rehabilitation services are denied due to lack of “medical necessity,” ask your loved one’s physician to intervene on his or her behalf. Ask the physician to provide records to the insurance carrier and, if needed, follow up by calling the insurance company.
- Know your rights. You have rights to access your loved-one’s medical and rehabilitation records. You are entitled to copies of the medical records, including written notes and brain imaging films.
- Take care of you. Take a break from care giving by asking another family member, friend or neighbor to help while you take time for yourself. Keep balance in your life by eating right, exercising or walking daily, and getting adequate rest.
Each year, an estimated 795,000 people experience a new or recurrent stroke, killing 137,000 people. That means, on average, a stroke occurs every 40 seconds. Forty percent of stroke victims are men and 60 percent are women.
Stroke is a medical emergency. The signs of a stroke include:
- Sudden numbness or weakness of the face, arm or leg, especially on one side of the body
- Sudden confusion, trouble speaking or understanding
- Sudden trouble seeing in one or both eyes
- Sudden trouble walking, dizziness, loss of balance or coordination
- Sudden, severe headache with no known cause.
If you or someone you know has one or more of these signs, don’t delay. Immediately call 9-1-1 or the emergency medical services (EMS) number so an ambulance can be sent for you.
For more tips, tools and support, or to find out more about stroke, visit www.strokeassociation.org.
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