WASHINGTON, D.C.—The more than 200,000 New Jerseyans suffering from psoriasis and psoriatic arthritis got a boost for the new year when the federal government approved $1.5 million to launch the first-ever psoriasis patient registry at the Centers for Disease Control.
The approval of the $1.5 million by Congress was realized after months of advocacy by New Jersey lawmaker Sen. Robert Menendez (D-NJ) with support from the National Psoriasis Foundation and its network of 58,000 advocates.
By aggregating data from the profiles of thousands of people with psoriatic disease, the patient registry will provide much-needed insight into how psoriasis and psoriatic arthritis impact those affected. Patient registries for other chronic diseases have been credited with improving treatment by as much as 50 percent through helping researchers and clinicians discover critical patterns in treatments and outcomes.
The National Psoriasis Foundation estimates that in the state of New Jersey as many as 219,000 adults live with psoriasis and/or psoriatic arthritis.
“I am proud to have helped secure important funding to help treat this disabling condition that affects so many people in our country every year. By supporting psoriasis medical research, we will help ensure patients have access to the best treatments available. I look forward to seeing the positive impact this resource will have on thousands of families nationwide, including many in New Jersey,” Menendez said.
A disabling and disfiguring disease that appears on the skin, psoriasis is the most prevalent autoimmune condition in the country, affecting as many as 7.5 million Americans. Up to 30 percent of people with psoriasis will also develop psoriatic arthritis.
In 2009, Psoriasis Foundation advocates sent more than 11,600 messages to their elected officials urging them to increase the investment in psoriasis research by the federal government. The cause was elevated on Capitol Hill further by singer—and psoriasis patient—LeAnn Rimes’ trips to D.C. last year to advocate for the registry.
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